Tag: hypersomnia

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Measuring What Matters Most to Patients With Hypersomnolence

A new expert consensus identifies patient-reported outcome measures to guide research—and finds that the most debilitating symptom still lacks an adequate tool.

Takeda to Unveil Latest TAK-861 Data in Narcolepsy at Sleep Europe 2024
Patient Voices Drive Push for Better Idiopathic Hypersomnia Care
Call for Participants in Rare Sleep Disorder Data Project
Kleine-Levin Syndrome Foundation Taps First Executive Director
Patient-Centric Data Platform Launches to Enhance Hypersomnolence Research
Kleine-Levin Syndrome Foundation Relaunches Medical Advisory Board

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Diagnostic Criteria for Kleine-Levin Syndrome Updated

The revised language aims to enhance clinicians' ability to diagnose the disorder accurately and help shorten the diagnostic journey for patients and caregivers in search of answers.