The board is composed of experts in several medical disciplines relating to KLS, including sleep disorders.

The Kleine-Levin Syndrome (KLS) Foundation relaunched its medical advisory board to help accelerate scientific understanding about KLS. 

The volunteer members of the board encourage scientific research to advance the search for a cause and a cure for KLS, provide objective medical knowledge to build awareness about KLS, and offer guidance for KLS patients and their caregivers.

“The KLS Foundation board of directors is grateful for the extensive knowledge and expertise of these respected researchers and clinicians,” says Kleine-Levin Syndrome Foundation president Steve Maier, who experienced 18 KLS episodes from age 13 to 27, in a release. “The medical advisory board will provide the evidence-based guidance sought by so many KLS patients and their caregivers.” 

Members of the board also raise awareness of KLS within the medical community by sharing information about KLS with peers and inspiring their colleagues to take an interest in KLS.

“As stewards of the KLS Foundation research program that was launched almost 30 years ago to find a cause and a cure, we are grateful for the medical advisory board members’ dedication to unraveling KLS’s mysteries,” says KLS Foundation vice president Dani Farber, who experienced 17 KLS episodes from ages 15 to 24, in a release.

The relaunched medical advisory board is composed of experts who volunteer their time and knowledge in many medical disciplines relating to KLS, including sleep disorders, neurology, and psychiatry. Members of the Medical Advisory Board together lead ongoing scholarly research about KLS.

The KLS Foundation welcomes to its medical advisory board:

  • Isabelle Arnulf, MD, PhD; Sleep Clinic, Sorbonne University, Pitié Salpêtrière Hospital, Paris, France
  • Guy Leschziner, PhD, FRCP; Guy’s and St. Thomas’ Hospitals, London. Professor of neurology and sleep medicine, King’s College, London
  • Alcibiades J. Rodriguez, MD; medical director of the Comprehensive Epilepsy Center – Sleep Center, NYU Langone Health
  • Melissa Russell, NP, MS, CNRN, FNP-BC; NYU Comprehensive Epilepsy & Sleep Center
  • Kiran Maski, MD; MPH; department of neurology at Boston Children’s Hospital; associate professor of neurology at Harvard Medical School
  • Emmanuel Mignot, MD, PhD; professor of psychiatry and behavioral sciences at Stanford University Center for Narcolepsy
  • Andrea Goldstein-Piekarski, PhD; assistant professor of psychiatry and behavioral sciences at Stanford University School of Medicine
  • David Rye, MD, PhD; professor of neurology at Emory University School of Medicine
  • Orrin Devinsky, MD; department of neurology at NYU School of Medicine
  • Christopher Hamper, PA-C; Jupiter Primary Care Group in Jupiter, Fla 

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